Category: information
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Advocating for Yourself
Living with a chronic illness presents a unique set of challenges, both in the professional realm and in healthcare settings. Navigating these spaces requires a proactive and assertive approach to ensure your needs are met. Advocating for yourself is not just a skill; it’s a lifeline. I am a huge…
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Red, White and Blue?
Raynaud’s…what is that?? Sometimes called Raynaud’s Phenomenon or Raynaud’s Syndrome, this condition causes the smaller arteries that supply blood to the skin narrow. Blood flow is then flow to affected areas, which is called vasospasm. This generally happen with temperature fluctuations, exposing skin to cold, or stress. When your skin is…
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She’s hot and she’s cold
Autonomic Neuropathy/ disregulation (also known as Dysautonomia) is a really a huge pain in my butt. This is probably my most troublesome condition in my day to day life. The autonomic nervous system controls all of your involuntary bodily functions like your heart rate, breathing, maintaining proper blood pressure, digestion,…
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Be prepared
Whether you immediately think of the song from Lion King or the Boy Scout Motto, the sentiment still applies. Be Prepared! I learned early on that being prepared for your bad days/Flares is the best gift you can give yourself. Creating a comfortable, convenient and purposeful space is key to smoothing the…
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Bumbles Bounce
Why would I title this post with a quote from Yukon Cornelius in Rudolph the Red Nosed Reindeer??? Well, I am a particularly clumsy person…and since my chronic illness that has just gotten worse. When we were dating many decades ago, my now husband used to say that when I was…
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Feel Better Soon!
Chronic conditions are …well…Chronic. Conditions don’t take holidays, they are often invisible to those around you, and many people will try to “FIX” you. I am not avoiding doing things with you, my not feeling up to doing something is not an excuse – it is a legitimate reason as…