Category: Coping

  • Your Voice!

    Your Voice!

    Living with a chronic illness can be an overwhelming and isolating experience, especially when the illness is not visibly apparent. For many people, the burden isn’t just the physical symptoms they endure but the emotional weight of feeling misunderstood, invisible, or judged by others. One of the most effective ways…

  • Disability “Police” – just stop it

    Disability “Police” – just stop it

    In recent years, there has been a noticeable rise in individuals who take it upon themselves to police the legitimacy of others’ disabilities. These self-appointed arbiters, often referred to as the “disability police no one asked for,” believe they are protecting the rights and resources of “real disabled people” by…

  • Trust Issues -the issue with the Weather

    Trust Issues -the issue with the Weather

    Weather can have a significant impact on autoimmune diseases and chronic conditions, influencing symptoms and overall disease management. Flares are a common response to any large fluctuations in temperature or extreme weather conditions. It is not only the disease itself, but side effects of your medications can also cause issues.…

  • What is the deal with Collagen?

    What is the deal with Collagen?

    Collagen is often touted as a beauty-enhancing supplement, but its significance goes far beyond skin-deep. As the most abundant protein in the human body, collagen plays a crucial role in maintaining the health and functionality of various bodily systems. Let’s delve into why collagen is so vital for our overall…

  • Where in the world? A look at Proprioception

    Where in the world? A look at Proprioception

    While we often think of our five senses—sight, hearing, taste, smell, and touch—there’s another crucial sense that often goes unnoticed: proprioception. Proprioception is the body’s ability to sense its position, movement, and spatial orientation. I have poor proprioception, most likely due to h-EDS. I had never realized that my “clutziness”…

  • What? Me stressed?

    What? Me stressed?

    Stress, whether stemming from psychological, environmental, or physiological factors, can profoundly impact the onset and progression of chronic illness. Chronic stress triggers a cascade of physiological responses, including the release of stress hormones like cortisol, which can dysregulate immune function, inflammation pathways, and cardiovascular health over time. Prolonged exposure to…